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The purpose of the RICH database is to build a unified multi-center data repository for hypospadias cases. This will help explore short and long-term outcomes and will be regularly updated to answer newly emerging clinical questions. The database could potentially facilitate high-level evidence needed in hypospadias surgery, collaborative research among pediatric urologists and dynamically integrate new variables to answer emerging questions with secured data access policies.
Purpose
To build a unified multi-centre data repository for hypospadias cases that helps to explore short and long-term outcomes and is dynamically updated to answer newly emerging clinical questions
Benefits
- Evaluating long-term clinical outcomes of patients with hypospadias
- Standardized multicentre computer-based database
- Joint Authorship of resulting manuscripts
- High-level evidence needed in hypospadias surgery
- Facilitate collaborative research among pediatric urologists
- Dynamically integrate new variables to answer newly emerging questions
- Secured Data Access Policy
Sources
- Bergman JE, et. Epidemiology of hypospadias in Europe: a registry-based study. World J Urol. 2015 Dec;33(12):2159-67. doi: 10.1007/s00345-015-1507-6.
- Hypospadias Outcomes Long-term Database (HOLD)
- INSPIRE (INternational hypo- SPadias REgistry)
- Yu X et al. Hypospadias Prevalence and Trends in International Birth Defect Surveillance Systems, 1980-2010. Eur Urol. 2019 Oct;76(4):482-490.
Principal Investigator
Dr. Tariq Abbas, MD, MRCS, PhD
Assistant Professor, Pediatric Urology, Weill Cornel Medicine Qatar, Doha, Qatar
Email: tabbas@sidra.org, tariq2c@hotmail.com
Coordinating Centre Contact
Asma Jamil
Research Coordinator
Sidra Medicine,
Doha, Qatar
Email: Ajamil@sidra.org